ComPaRe – COMmunity of PAtients for REsearch- Dr Philippe Ravaud | Research - Institut Pasteur

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Quantitative Cell Biology of Bacteria

Department of Microbiology – Defense Thesis : “Rôle des Phages dans l’Évolution des Leptospires”, by Olivier SCHIETTEKATTE

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Diseases

Organisms

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Technique

Date

18

Oct 2018

Time

11:00:00

Institut Pasteur, Paris, France

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Building: François Jacob

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2018-10-18 11:00:00 2018-10-18 12:00:00 Europe/Paris ComPaRe – COMmunity of PAtients for REsearch- Dr Philippe Ravaud Dr Philippe Ravaud is a MD-PHD in epidemiology and the director of the Centre of Epidemiology at the Hotel-Dieu (Paris) and of the French Cochrane Centre. For more than 15 years, his primary research has […] Institut Pasteur, Paris, France Clementine Schilte clementine.schilte@pasteur.fr

Speakers

Philippe Ravaud

(Centre of Epidemiology at the Hotel-Dieu (Paris))

About

Dr Philippe Ravaud is a MD-PHD in epidemiology and the director of the Centre of Epidemiology at the Hotel-Dieu (Paris) and of the French Cochrane Centre. For more than 15 years, his primary research has been evaluating and developing methodological solutions to assess treatments in patients with chronic diseases.

He is now launching ComPaRe (“COMmunity of PAtients for REsearch”), a Citizen Science projecty based on an umbrella e-cohort aiming at recruiting 100,000 patients with chronic diseases over 10 years and following them for 10 years. Patients join the project to donate time to accelerate research on their conditions by answering regular Patient-reported Outcomes and Patient-reported Experience instruments, online. All information reported by participants can then be enriched with other sources of data such as medico administrative data (SNDS), hospital data (APHP data warehouse), or data from patients’ own wearable devices.

ComPaRe is also a new model for research. Researchers from public institutions can easily join the project and use any data already collected or quickly set up new online questionnaires to conduct their research. Thus, in ComPaRe, a participant joins the study once but may participate in multiple research projects. Similarly, a data is collected once but may serve multiple research teams. This shared infrastructure for research will drastically reduce recruitment efforts in research and accelerate the path to discovery.Recruitment in ComPaRe started in January 2017 and is still ongoing, with about 7800 patients are currently included.

https://compare.aphp.fr/

Location

Building: François Jacob
Address: Institut Pasteur, Paris, France

Published on: 15 Oct 2018 • Modified on: 06 Feb 2019

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